DNA-testing company 23andMe made headlines last week when it announced that it would share consumers’ anonymized genetic data with pharmaceutical giant GlaxoSmithKline as part of a $300-million deal.
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23andMe is a local company to me. IMHO, they have an ethical obligation to share the results of any such collaborative research with their customers. They began on the ethical high ground with the goal of making DNA results available to customers, but then did not handle relations with the Food and Drug Administration (FDA) very well. The FDA was concerned that they were overstating the significance of genetic test results. The company then terminated the distribution of health oriented reports to customers. The GlaxoKline agreement is a further step away from their initial goals.